Tony’s story: From diagnosis to advocacy in clinical trials
Growing up in a small town in North Carolina, Tony was always active and played various sports. After college, Tony’s passion for staying active led him to starting his own health and fitness business.
When he was diagnosed with multiple myeloma, a rare form of leukemia, at just 39 years old, it came as a surprise. He had heard that this type of blood cancer usually affects people much later in life. Despite the initial shock, Tony’s journey has been one of strength and advocacy. He first heard about clinical trials from his oncologist, and considered participating twice.

I wanted to be a part of the cure because that cure needs to start with all of us. Especially people who look like me and within the Black community because only 5 percent of Black patients participate in clinical trials.
-Tony
Now, more than a decade later, Tony emphasizes the importance of staying positive and engaged in your healthcare. He shares his experiences with clinical trials and the need for greater representation of Black patients in these crucial studies. Watch Tony’s story below.
*The experiences shared by patients are unique to each individual. While these stories provide insight into their personal journeys, they may express opinions or perspectives that do not necessarily reflect those of the PAN Foundation.

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